CIICA Update (OCTOBER 2022)

“This has really made me think how I can inspire other young poeple to speak out.”

Our inspiring session on the opportunities and challenges for young people, led by Bowen Tang, CI User, and President of the International Federation of Hard of Hearing Young People, gave young CI users from around the globe the opportunity to share their experiences about the challenges and opportunities at home, school, higher education and work and look to the future.

How do they manage their cognitive load? How do you manage the boss? What changes do they want in the technology and their services for the future?  How do they advocate?
Thanks to all those who were inspired to join us after the event- send us your news!
Have a look at https://ciicanet.org/events/ciica-live-young-people-with-ci/ for the presentations; pdfs and captioned videos available. DO USE THEM!

 

WEDNESDAY 30 NOVEMBER: 19:00 UK;  20:00 CET;  14:00 EST; 11:00 PST; Thursday 1 Dec: 06:00 AEDT; 08:00 NZ 
There were 1283 responses to our global survey of adults with CI – what services would you like and what are you getting? This CIICA LIVE event will explore some of the issues emerging from your responses.

The first results have been one of the most visited areas on our website.. go to https://ciicanet.org/2022/06/22/sharing-initial-data-from-our-survey-of-adults-with-ci-thanks-to-you-all/  to have a look.

Issues include funding, rehabilitation, life-long care, managing the technology and counselling. It’s an opportunity to comment: our final report will influence policy and practice.

Full programme soon! Register here: 
https://us02web.zoom.us/meeting/register/tZAodOysqTouHtAKSaBoCw7rW1zHHFAO_fJo

 

Helen Willis, in our Young People’s CIICA LIVE event, spoke about Listening and Cognitive Effort and what we know from neuroscience to help manage this.
The British Association of Teachers of the Deaf provide a number of helpful resources on their website and among these are some from Helen: if you go to https://www.batod.org.uk/  you will find many resources which are useful in school and for parents. If you go to  https://www.batod.org.uk/going-for-gold-a-resource-for-empowering-deaf-children-with-cochlear-implants-to-manage-listening-effort/ you will find two resources from Helen: one for children and one for adults.

Going for Gold: a resource to empower deaf children  (adults) with cochlear implants to manage listening effort. 

 

After 12 years as President, Ruth Warick of Canada handed over the Presidency to Avi Blau of Israel, during IFHOH’s exciting World Congress in Budapest.  Dr Shelly Chadha, leader of the great Ear and Hearing Care initiatives at WHO, inspired us from the start of the Congress about why it is so important that we all advocate for better services globally for those with hearing loss. The figures are stark:

“430 Million need hearing services
only 17% have access to interventions. “
Dr Chadha urged us to Raise Demand and Improve Supply 

At the meeting Dr Adam Kosa with Ruth Warick and Avi Blau launched the Budapest Declaration recognising Auracast, the new Blue Tooth Techology with its Implications for Hard of Hearing Persons. IFHOH’s new policy on CI was also launched, an important moment.

Go to https://www.ifhoh.org/position-papers for these important documents.

 

World Hearing Day 3 March 2023: A Massive Call to Action Ear and hearing care for all! Let’s make it a reality. The key messages for WHD 2023 are: 1. Ear and hearing problems are among the most common problems encountered in the community. 2. Over 60% of these can be identified and addressed at the primary level of care. 3. Integration of ear and hearing care into primary care services is possible through training and capacity building at this level. 4. Such integration will benefit people and help countries move towards the goal of universal health coverage. The WHD 2023 will mark the launch of: The Primary ear and hearing care training manual for health workers and doctors. The manual will be accompanied with trainer’s handbook and other community resources.More information on the campaign is available on the WHO website.  Edit-able formats are available upon request by writing to [email protected]  Start preparing your action now! Go to https://www.who.int/campaigns/world-hearing-day/2023

 

The 13th Symposium of EURO-CIU is nearly here and filling up fast. Hosted by OPCI and ONICI: Cochlear Implants Now and in the Future will take place in Rotterdam, on 11 & 12 November 2022.
Hennie Epping, Peter Helmhout, Henk van Rees & Leo De Raeve

Go to EURO-CIU website for more information.https://eurociu.eu/13th-international-symposium-eurociu-rotterdam-2022-netherlands/
Go to 13th Symposium of EURO-CIU: Cochlear implants now and in the future – CIICA (ciicanet.org) .

 

Help is still needed in the Ukrainian situation: the Lenhardt Foundation is providing  deaf refugee children with educational resources they need in their new schools.  So many groups are helping to get the resources needed to Ukraine –   Have a look at what is happening and see how you can help – and see the video prepared for International CI day for EURO-CIU by the Ukrainian group.
Go to  News – CIICA (ciicanet.org)
Supporting the education of these children is so important. 
No matter what life situation you find yourself in, the realization that there are people ready to support for free brings a flurry of positive emotions🪄💫! Such incredible wizards 🪄 ☀️This morning our Arthur received a whole box of gifts🎁 for the start of the new school year! This year, he doesn’t have his usual 🔔 “first call” and 🍂 “ruler”, but he definitely has a firm understanding that people with big ♥️ live in this World! We sincerely thank you for such support 🙏!